Thoughts about ability and disability
Mar. 4th, 2022 11:23 amI have been pretty healthy most of my life. I have had some minor health things but they didn't majorly affect my day to day living. I have been very privileged in that respect. While I have grown up with family/family friends who have need mobility aids or had chronic illnesses, so I had some exposure to how make sure they are able to participate in events. And since taking my current position in 2017, I have been more aware of some of the various things people need to make sure they are able to fully participate in our events. (reserved front row seating, large print handouts, making sure aisle are large enough for walkers/scooters/wheelchairs to maneuver). But I didn't realize how much this takes up people brains.
In my current pregnancy I have been vary aware of things like, how far away is the nearest bathroom, what foods are around me, who around me is coughing. Previously when i was in the 3rd trimester I was definaly moving slower and finding certain movements (bending/squatting) to be very difficult. But this pregnancy has brought things to a whole new level that is limited my mobility. I am having major pains in my hips/back/groin which means that I am often walking/shuffling around the house with at least one hand on a wall to make sure that I am supported. This also has meant that my energy level (spoons) has drastically decreased. Currently on a good day I have about 75% of my non-pregnant level of spoons and on bad days. I am barely making it through the bare minimum of my day before falling asleep by 8pm.
Thankfully there are something I can do/support that I have. I have enlisted my son to help me get things off the floor or to feed the cats for me in the morning. My husband has taken over cooking dinner when I just need to lie down. And everyone understands that sometime I am so wiped out that we are ordering dinner because I haven't decide what to make for dinner/ haven't\made it to the grocery store yet.
But being pregnant during a pandemic means that I have some other things on my side. I am working from home 4 days a week, so I have the ability to keep my feet up while I am working, more flexibility about what and when I am eating, the ability to lay down in my bed when taking a break. Plus grocery store curb-side delivery is amazing.
I wonder what will happen as people decide they are ''going back to normal", these so helpful things for me (and many others with disabilities) are they just going to disappear? I hope now. I know that my job is planning on continuing to have events livestreamed even has we start doing in person events. But I don't know. My issues are (hopefully) temporary but this still impacts so many other people.
In my current pregnancy I have been vary aware of things like, how far away is the nearest bathroom, what foods are around me, who around me is coughing. Previously when i was in the 3rd trimester I was definaly moving slower and finding certain movements (bending/squatting) to be very difficult. But this pregnancy has brought things to a whole new level that is limited my mobility. I am having major pains in my hips/back/groin which means that I am often walking/shuffling around the house with at least one hand on a wall to make sure that I am supported. This also has meant that my energy level (spoons) has drastically decreased. Currently on a good day I have about 75% of my non-pregnant level of spoons and on bad days. I am barely making it through the bare minimum of my day before falling asleep by 8pm.
Thankfully there are something I can do/support that I have. I have enlisted my son to help me get things off the floor or to feed the cats for me in the morning. My husband has taken over cooking dinner when I just need to lie down. And everyone understands that sometime I am so wiped out that we are ordering dinner because I haven't decide what to make for dinner/ haven't\made it to the grocery store yet.
But being pregnant during a pandemic means that I have some other things on my side. I am working from home 4 days a week, so I have the ability to keep my feet up while I am working, more flexibility about what and when I am eating, the ability to lay down in my bed when taking a break. Plus grocery store curb-side delivery is amazing.
I wonder what will happen as people decide they are ''going back to normal", these so helpful things for me (and many others with disabilities) are they just going to disappear? I hope now. I know that my job is planning on continuing to have events livestreamed even has we start doing in person events. But I don't know. My issues are (hopefully) temporary but this still impacts so many other people.